Organising international meetings to exchange knowledge on mucupolysaccharidosis (MPS)

A solution led by

Bianca Meesen Bianca Meesen


MPS is a rare disorder affecting multiple organs. To improve the multi-disciplinary management of MPS patients, there is a need for knowledge exchange between MPS experts and ‘organ-specific’ specialists.


Organise organ-specific, international 2-day in-depth closed meetings and publish the outcomes of the presentations and discussions in peer-reviewed journals.

Congratulations for the excellent meeting held in Dublin. The organisation was perfect…” Roberto Giugliani, Geneticist, Brasil

Meeting materialsPreparatory and on-site meeting deliverables

From 2009 to 2014, Ismar supported BioMarin and the scientific committee with 4 meetings, focussing on the eyes, heart, lungs and problems associated with MPS patients reaching adulthood. Each meeting was attended by ~80 MPS & organ-specific experts.

Ismar was involved in:

  • Meeting identity, agenda, binders and staging development
  • Inviting/briefing up to 40 faculty members
  • Presentation editing and distribution on USB
  • Logistics
  • On-site meeting coordination

Post meeting materialsPost-meeting deliverables

For each meeting, Ismar prepared one or more draft review-type manuscripts highlighting the key messages from the presentations and related discussions. BioMarin and the involved speakers/authors reviewed each manuscript. The manuscripts were published in peer-reviewed journals and/or as a journal supplement and distributed widely (e.g. at congress booths) to the target audience by BioMarin staff.

Bianca Meesen Interested in our solution?

Feel free to contact me to see how we can help you achieve your goals.

+32 3 491 82 78

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